RETINA INTERNATIONAL

Retina International is a voluntary charitable umbrella association

Retina International (formerly known as the International Retinitis Pigmentosa Assoc. - IRPA) is a voluntary charitable umbrella association of 33 national societies each of which is created and run by people with Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies, their families and friends.

The main objective should be to promote the search for a treatment for Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies. Main emphasis should be given to inherited forms of retinal dystrophies.

PARTICIPATION OF PFFB AT THE R.I WORLD CONGRESSES:

The Foundation has participated in several R.I World Congresses despite severe financial constraints. The official delegation consists of two PFFB representatives. However the consultant Ophthalmologist and the Project Coordinators of the research team and the PFFB talking book library have also attended the World Congress more then once. Enlisted below are the R.I World Congresses attended once in recent years:

• 6th IRPA World Congress Dublin Ireland 19th-22nd July, 1990

• 8th IRPA World Congress: Paris France 9th-10th July 1994

• 9th IRPA World Congress: Washington U.S.A 15th-20th August 1996

• 10 IRPA World Congress: Lugano Switzerland 18th-19th July 1998

• 11th R.I World Congress: Toronto Canada14th-16th July 2000

• 12th R.I World Congress: Chiba Japan 31st July-4th August 2002

• 13TH R.I World Congress: Noordwijik Netherlands 2nd-3rd July 2004

• 15TH R.I World Congress: , Helsinki Finland, 4th-5th July, 2008